Well Monday morning we got Genevieve up around 5:40am and drove an hour to the Aurora Childrens Hospital for her Neurologist appointment. I had a bad feeling about what we would find out, but I kept my mouth shut. Well the Dr asked all the questions about her episodes and I explained everything to him and he asked if they were connected in any way or anything like that. Well then he tested her nerves like they do with your knee on her arms, wrists, knee and foot. After he did all that he wanted to do he told us that her left side was jumpier than her right side which is an indication of seizures. He also had her stand up and said she stands with her feet wide apart which is another one but also could be that she is so young and just started walking. Well I also told him she had a hand preference, which is her right hand, and since she is only 13 months he said she shouldn't have one. So that is another indication. Well I guess if she is having seizures, which it is most likely, it is happening on the left side of her body. He told us that he wanted to do a 24 hour EEG so that she would fall asleep and an MRI with her sedated. Then after those happen I can call and find out the results, but if I actually see her having a seizure instead of what I just described to him then I can call and they will automatically put her on medicine. If they put her on medicine it will not be forever. They plan on it only being two years and after we take her off she won't be having any more seizures. Her MRI is on the 12th at 8:30 am and her EEG is on the 13th and gets taken off the 14th!
After the appointment I told my Aunt Anna on my Dad's side what was going on because she asked and I found out that my Uncle had seizures when he was little but it was never diagnosed. I also found out he had lesions on his brain that they think could be related to seizures. That was one of those moments that I wish my Grandma Carol was here so that I could ask her questions, she always remembered everything it seemed like, but since that is not possible I just go with the information that I have.
I hate that this is happening to my little girl. I waited to post this because I know who it gets sent to and I wanted to tell her father first but since she doesn't seem to be important in his life I just don't care. He hasn't called and talked to her and he barely does. I am not trying to put him down, but he should care about his daughter more than he does in my eyes. But it is his loss.
We have been going for walks after dinner and Genevieve loves them! Yesterday and today she would stop and want the balls that Mom or I were carrying to play with when we got to the park. She cracks me up. Today though she just sat down and threw a fit. She ended up going to be 30 mins before she normally does.
I love her so much and she is the highlight of my life. I honestly don't understand how someone could not want her or care about her.
No comments:
Post a Comment